Health Update - Our Hope is Built on Nothing Less...

Well, I'm happy to report that the new medication regime seems to be working. I've had no major anaphalaxis attacks or episodes and have not had to use my epipen since the last dreaded incident in May. And so for now I've been given the clear to avoid more aggressive treatments like chemotherapy. As long as I don't have any more major episodes I'm cleared from doctor visits and tests until my next bone marrow biopsy which will probably be in October.

I still have rough days - usually two or three a week. The hardest thing for me is to take it easy on those days. I have to deprogram my nutso mind to just lay low. I'll admit I still don't do that and I usually end up paying for it. Sitting still just isn't in my nature but learn I must. I think for awhile I was so relieved that I'm not in the later stages of the disease or staring down Leukemia and facing imminent death that I just wanted to shake off all that happened in April and May and go back to being Dianna before the diagnosis.

But now I'm settling in that this is something I'm going to have to fight for the rest of my life. Jason's Mom who has Lupus shared something with me that she tells herself on her rough days when you just don't feel like getting up; "Suck it up and put on your big girl panties!" I just love that! It's both humorous and encouraging. I'm fighting to keep a hold of the lessons that God has taught us through all of this. I pray that we keep relying on him and not on ourselves. It's such an easy thing to slip back into as daily life numbs.

My hope is built on nothing less
Than Jesus' blood and righteousness;
I dare not trust the sweetest frame,
But wholly lean on Jesus' name.
On Christ, the solid Rock, I stand;
All other ground is sinking sand.

Goodness, I love that hymn!!!


Vin's asthma has been flaring up again. He's had a tough week. Currently, he's getting four breathing treatments a day. Two of which are a half hour long each. It's a lot to ask a little guy to sit still for that long; while he doesn't like it he has been handling it very well. It is hard to watch him struggling to breath and to see him struggling. Jason was up a good portion of the night Sunday giving Vin treatments as he slept. The good news is that we were able to avoid having to go to the ER and he FINALLY seems to be coming out of it. Our tough and sweet boy!

Louie is doing great and is such a delight. This week he started waving hello and even signed "more" back at me. Of course, he has no idea what the sign means but he is quite a good mimicker.

I'm so excited that we are moving in two weeks!!! Jason will be working out of AIG's (no snickering) lower Manhattan office and we found a cute place in Matawan, NJ. It is about an hour drive from family in S. Jersey and about hour and half commute for Ja via train. The great news is that the house is within walking distance to the train so he doesn't have to contend with the crazy train station parking issues.

That's all for now. Hope everyone is well.


Dianna

Still Enjoying My Fake Flower Arranging Hobby

Here is an arrangement I made for Mom Kelly for her birthday

Hanging with the Hrivnaks

Isaac and Vin - what a pair of thugs
Anna and Louie

Photo Session: For Goodness Sakes Can't I Get One Good Picture?!

Upstaging Louie

Vinnie not wanting to have Louie touch him

Louie grabbed Vin's hand and was thrilled when Vin agreed to hold it for a brief time.

Not so bad

Photo session is over

Louie Showing Off His New Skill of Sitting

Vin and Luca at Lowes

Trip to NJ! Home again - Saturday, 5/23 Jason's 32nd B-Day

On Saturday John and Andrea threw us a BBQ so we could catch up with all the family. Even though Jason made me promise not to tell anyone it was his birthday, they remembered and had a small birthday celebration for him. Andi made him a cake and all the cousins pitched in to get him a generous gift card to Lowes. At the end of singing him happy birthday Vin put his arms around Jason's neck and said "Happy Birthday Daddy!"





Let the festivities begin!

Ariel, Matthew and Peter

Patty and Scarlette

Paige and Skyler

Boys playing horseshoes

Baseball Game with the wee ones

This is where things get interesting. Watch as Ariel and Matthew descend upon Peter to get the coveted wiffle bat from him. As Vin looks on.

Just insert yelling and screaming and you will get the moment.

Watch and learn Vin.

Watch and learn.

Poor Peter is now on the ground.

Don't you love how instead of intervening I'm taking pictures.

Andi and Skyler

Scarlette

The Men's Table!

Julie and Louie

Patty and a bundled Scarlette

Everone playing a little wiffle ball

Singing Happy Birthday to Jason

Trip to NJ! Home again - Sunday, 5/24

Sunday Morning Visit to Grandmom and Grandpop Allchin

Waiting for the Delanco Memorial Day Parade to start

Get me out of this thing!!

Walking down to the parade

Bath Time!

Louie and Sklyer

Just look at those eyes!